Today's story in the NICU started a little earlier than usual. I knew that Will would be receiving his only tube feed for the day shift at 8am, and I wanted to be there for the feed. Will has definitely shown that he no longer likes being fed through his feeding tube. Instead, Will wants to taste his food and take it orally. He's such a smart boy. However, Will had to have one tube feeding this morning and one tonight. When Will has his tube feed, he tends to need more oxygen and he refluxes which is very very painful. It is so hard to watch your child be in pain and not be able to do anything. I know that reflux is not the worst thing in the world, but it is still hard to watch him be uncomfortable. During the morning tube feed, I held Will, rubbed his back and listened to Van Morrison radio on Pandora. Will seemed to stay somewhat calm, especially when I turned on the radio. I stayed for the entire day and for Will's tube feed at 8pm. Again, I held Will close, rubbed his back and listened to Van Morrison. Apparently, Will is a big fan of Van Morrison. During both feeds, Will didn't really need an increase in his oxygen and he didn't seem to be too uncomfortable. Van Morrison can cure all!
Since Will only had one tube feed during the day, he nursed twice and bottle fed once. He did great with all his feedings and really didn't need a bump up in his oxygen. He's really starting to catch on to eating and breathing at the same time! Before his 8pm feed, Will was weighed and he gained a whopping 20 grams for a total of 2260 which is 4 pounds 15.7 ounces! He is just shy of 5 pounds. Hopefully we can reach this milestone tomorrow. With this weight gain, his successful feedings during the day, and if he can oral feed tonight, he will pass stage 3! This means that he will move on to stage 4 which is food on demand with no tube feedings if he takes all his milk by mouth! Fingers crossed!
Will didn't have his eye exam today which is very frustrating for me, and I hope to talk to the nurse practitioner tomorrow about my frustrations. He is supposed to have the exam on Thursday. I wish it could be sooner!
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