We also received scrapbook pages with pictures of Will taped to them, a CD with pictures of Will throughout his stay, crotcheted items, and a tile with a Dr. Seuss saying on it. These are just a few examples of the items we were given throughout our stay. This group also organizes a scrapbooking night on Tuesdays where all the paper and supplies are supplied free of charge and on Wednesday nights there is an event that is organized for the parents by this group. The support that current NICU families receive from this group is absolutely amazing! It makes it bearable to go through the NICU experience with the support of former NICU families.
Tuesday, July 24, 2012
July 24, 2012- IMC Common Bonds Fundraiser
July 24, 2012- Being Home
Tuesday, July 17, 2012
July 17, 2012- Learning to be at home
Friday, July 13, 2012
July 13, 2012- Home Sweet Home
Thursday, July 12, 2012
July 12, 2012- Rooming In
Will had a great but tiring day. He passed his eye exam which means that there's no sign of ROP. ROP is a preemie condition that affects babies' eyes. Since the exam was negative, Will is able to be on his home oxygen need. Again, establishing the need is one step closer to going home. In order to go home on oxygen, I am rooming in with Will. We are in our own room right outside the NICU, and I am taking full care of Will. It's like a practice run for home. Wish me luck! I love being able to feel like a real mom!
Check back tomorrow for pictures and a new update!
Wednesday, July 11, 2012
July 11, 2012- Light at the End of the Tunnel
Before we can go home, Will still has a few tests to pass. He has to continue to feed everything by mouth and not the tube. Check. He has to gain weight. Check. Last, he has to pass his eye exam. TBD. Will's eye exam will be tomorrow sometime, I hope in the morning, but we have no control when the doctor will come in.
I can't even begin to explain how excited Brandon and I are at the thought of taking Will home in the next few days. We have been running around getting Will's room ready, washing his clothes and making sure his car seat is ready to go. I hope in the next few days, I will be able to put into words how excited and scared I really am at the thought of finally taking my son home and becoming a real family in our home.
Tuesday, July 10, 2012
July 10, 2012- Stage Four
Will's respiratory status was also really stable today. At one point, he was even on room air with just some air flowing through his nose. Will really only needed oxygen when he was being bottle fed. He is such a rockstar! He will most likely come home on oxygen, but I am okay with that as long as he comes home soon!
Monday, July 9, 2012
July 9, 2012- A Long Day in the NICU
Sunday, July 8, 2012
July 8, 2012- Happy Anniversary
Saturday, July 7, 2012
July 7, 2012- The Roller Coaster Continues
Friday, July 6, 2012
July 6, 2012- The Best Part of the NICU
Thursday, July 5, 2012
July 5, 2012- First Bottle
Wednesday, July 4, 2012
July 4, 2012- One month Old
Tuesday, July 3, 2012
July 3, 2012- Making Progress
Another plus of the day was Will's nursing attempts. Will nursed twice, once at 11am and once at 2pm. Both times he did a great job coordinating his breathing with this eating. He didn't need his oxygen turned up at all and he was able to take full feeds with no respiratory distress. With Will able to nurse twice, we just needed him to gain weight tonight. If he gained weight, we could move to the next stage of feeding. This stage includes Brandon giving Will his first bottle! Brandon just called the NICU and Will lost weight! He lost about 40 grams, but his nurse wanted to weigh him one more time at 11pm to see if his weight was a true weight. With the weight loss, we will have to continue on with stage one of feeding. This is a bummer, but I have to look at the overall picture and see that Will is doing well with him oxygen and we were able to wean him off his high flow. I know that the weight gain will come and that Will is smart enough to get through these feeding stages in a timely manner. Fingers crossed for another good day tomorrow!
Monday, July 2, 2012
July 2, 2012- Four Weeks Old!
Will is four weeks old today! In a way, I can't believe that it has been 4 weeks since I gave birth to this amazing little man and in another way, it has been the longest 4 weeks of my life. My days have been consumed with driving to the NICU and sitting with Will all day. I have my books (thanks Mom) to read and a sweet baby to hold and nurse, but the days are still passing slow. I can't wait to take him home and be a true family with Will, Brandon and my dogs. I hate being away from the house all day every day.
Sunday, July 1, 2012
July 1, 2012- Making Small Strides
After everyone left, I tried to nurse Will again, but he was too tired to nurse. He laid with me and smiled at me instead of nursing. Since Will was not successful with the nursing, he had his milk fed to him through his feeding tube. Will did great with the feeding even with his new oxygen levels. He never desatted and his respirations didn't increase. This is a great step in moving forward with his oxygen weaning. Brandon and I are so proud of our sweet son!
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